Greetings!
Another eventful week--even though most of it was spent doing nothing with Allie and I sleeping a lot--lol! I wasn't sure why she was so fascinated...
Apparently the inflammation has moved into (or was all along) the inside or back of my eye. They tried to get pictures of the inside of that eye. Used two machines. Got another person to come in and grip my head still. I had tried so hard not to move. Didn't think I had. It made me feel like it was my fault they couldn't get a picture. Couldn't see what they wanted me to look at so tried to look wherever direction they described to me. Bright lights hurt and made me blink and eye water. Couldn't open my eye all the way. Neither machine was successful. Went back to the room and they dilated my eye. Dr. Breen tried to look inside, too, but couldn't see. They couldn't see inside and I couldn't see much looking out.
Called in another male doctor to do an ultrasound on my eye. He called in another guy. The two of them seemed baffled by the "mystery" in my eye. I tried to tell them about my compromised immune system and the Keytruda aftereffects but they paid little attention. Even though I had done some researching online during the week and read about the eye issues previously mentioned in summaries (uveitis, for one) which seem to correlate with autoimmune diseases even though there is often not a known cause if it isn't an injury. They both seemed a bit freaked out and confused, Leah and I thought. (She was in the original room with me the whole time except when they took me off to the two picture machines for a long time.) They threw out numerous possibilities of what it could be. Said I needed to see this other doctor so he could take a sample of the fluid in my eye in order to determine what they were dealing with in order to treat it.
Left with an appointment at 8am on Friday with this Dr. Ridgeley.
Thinking about a needle in the eye...well, I didn't get a lot of sleep.
Friday morning Leah and I were there to meet this additional doctor. We were both so impressed! He was calm and didn't act freaked out like those other two guys or the nurses trying to get those pictures. First of all, he asked me about whether I had an autoimmune disease...and listened when I filled him in. He dilated my eye. Told me that because of all the inflammation my eye was not dilating properly. Tried dilating it again. Said he couldn't see well enough. Told me he wanted me on dilation drops 3X a day and to take the steroid drops every 2 hours I am awake and he wanted me back on Monday.
As soon as he left the room Leah and I talked about how calm he was and how he seemed to actually know more, etc. I may still get a needle in the eye tomorrow, but I do trust this doctor more...like I trusted Dr. Breen.
Also, a bit scary when I heard fibrotic membrane or something like that when the two guys were discussing the ultrasound with the poor pictures. Who knows what is going on.
Meanwhile, I rewatch Vera in dim light with one dilated eye and a painful hand and feet. Slept 12 hours Friday night-lol!
I caught Allie playing with the white bouncy toy on the top of the cat tree.
She's suddenly been back up there again/
The card for this week. :)
I think I am pretty comfortable. I know I do not know everything, that's for sure. But I do have that "stubborn Swede" side to me, too--lol! How about you?
Anyways, that's it for this week. I hope we can find out something about this eye. I probably won't get a lot of sleep tonight, either--lol! Sorry that I still haven't been able to write letters. I have tried to make a few comments while I can on some blogs. Reading almost all of them, also, when I can. Thank you so much for coming around to say hi every week. Thank you for the cards and letters. Means the world to me. Till next week. Thinking positive. Fingers crossed.
