Didn't manage to blog yesterday. Was much more of an effort just to shower and throw a lounger and robe on than I had expected. I had Katie coming to clean and never even got dressed so that tells you how I've been feeling in a nutshell. After she left I fell asleep for several hours and just never could work up to doing the blog. This morning I am starting with good intentions. Hello!
The main issue...can't stop throwing up and dry heaving. Even wakes me up while I am sleeping. The new once a day pill doesn't seem to be doing much of anything. I had to cancel my CT Scan for tomorrow. Contacted Dr. Kobrossy and he refered me to a GI specialist yesterday...so I should be getting a call from them soon to set up an appointment. Not sure what is going on because Kobrossy says all the chemo should be out of my system by now.
I told him that the chemo seems to have set off all my chronic issues...like the covid vaccine did. My chronic fatigue seems to be magnified--hasn't been this bad for years. Maybe the chemo has also drug up an older issue I haven't had to deal with for maybe fifteen years now. When I got the hand/arm injury on the job in the 90s and they gave me high doses of Ibuprofen for months it seemed to eat my guts out. I had acid reflux issues really badly for years afterwards and have had trouble taking certain medications since then. Finally had subsided...maybe12-15 years ago, I'd say. Only rare flare ups. I did throw up on occasion back then and would get nauseous...so maybe the chemo set that off, too? Anyways, that's my theory.
Well, let's see...going back through the week.
Tuesday I managed to lurk in another monthly Kaila Givehand bookbinding workshop. Stayed awake for the whole thing.
Thursday Leah came by in the evening. She cut back the planters for me, brought out trash and some stuff to the garage.
Friday was the clinic. I was carryng my little puke container again. This time the girl used a larger needle and my port worked right away. Saw Kobrossy after the labwork came back. He seemed baffled by my still being so nauseous because all the chemo should be gone from my system. Gave me a once a day antacid pill to take in the morning, said I should get set up for a CT Scan (Wednedsday--that I just had to cancel), and he'd see me Friday and we'd probably start immunotherapy. I asked for more of the anti-nausea medication I had gotten in the IV. He also gave me potassium and magnesium. Leah and I picked up meds at the drive-through pharmacy on the way home. The pharmacist also suppested a prescription Pepcid I could take in the evenings if I still had trouble. (His wife just went through chemo.)
Despite the IV medication, I was barfing by evening. :( Not even able to drink water like crazy for a couple of days like last week.
Monday Katie came to clean. All the rest of the time has been spent sleeping and barfing and watching shows, really.
So, waiting to hear from the GI department about an appointment. Supposed to ge back to the clinic on Friday. Can't imagine starting immunotherapy feeling like this.
Oh, and for the heck of it I asked Dr. Kobrossy for the prescription Pepcid, too, and he phoned that in. What the heck. I'll try anything.